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MidwestWhat We Do Mission/History Leadership/Staff Spending Responsibly Local Groups Shop Contact Us Give Neurofibromatosis Midwest Clinics, Awareness, Research, Education & Support What We DoMom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ” -Myshell Clinics Awareness Research Education Support Scholarships Young Adult Leadership Testimonials Get Involved..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF . ” -Sue Join the Community Fundraise Participate in Research Ways to Give Raise Awareness Walk4NF Events Volunteer Join the Dream Team Share Your Story Join the Board LearnI received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ” -Jessica Find A Doctor What is NF? NF Type 1 NF Type 2 Schwannomatosis Be iNFormed Database Resources iNFo Fair Faces of NF Research Trials and Studies Events {The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate Walk4NF 2024 iNFo Fair All Events News/Blog Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING .” – S.E. Age 29 Research Education Clinics/Care Events Giving Faces of NF Past Newsletters Behind The Scenes Support 2024 Walk4NF Stroll, Celebrate, Connect Columbia, MO April 20 | Madison, WI May 11 Indianapolis, IN May 18 | Naperville, IL June 8 SIGN-UP NOW! NO ONE FIGHTS ALONE! Join NF Midwest so that no one fights alone! GIVE the gift of CARE. Donate Now The Faces of Neurofibromatosis See them, hear them, care about them! Read Their Stories Improving the Lives of People with Neurofibromatosis Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner. Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri. Fore! Make a Birdie for Charity at the 2024 John Deere Classic! Golf fans and philanthropists, rejoice! The John Deere Classic’s Birdies for Charity program is back, offering you a fantastic way… Continue Reading More Articles Great News! $25 Million Secured for Neurofibromatosis Research in FY 2024 There’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically… Continue Reading More Articles Legends of the Cause: Gordon and Gert Legends of the NF Cause: How Do We Honor Gordon Cummings and Gert Ginsberg? Losing Gordon and Gert In the… Continue Reading More Articles Thank You to Our DC Advocates Thank You to Our Boots on the Hill” We extend our heartfelt gratitude to Laura Haslam, Christina, Kassandra Thomas, Adam,… Continue Reading More Articles Opportunity For Those Wanting to Continue Their Education: Scholarship Applications Are Open! Here is your sign to start the new year working on your goal of continuing post high school education. The… Continue Reading More Articles NF MIDWEST C.A.R.E.S. to improve the lives of people with NF Over 100,000 Americans suffer from Neurofibromatosis We support 6 states 13 clinics 1.5 million In Research & Care Help Support NF Midwest Help NF Midwest C.A.R.E.S. make a difference in Illinois, Indiana, Wisconsin, Kentucky, Iowa and Eastern Missouri. Donate Find NF Care Get the best care! Find an experienced NF doctor/clinic in the NF Midwest region. Be iNFormed Knowledge is power! Learn and understand as much as possible about neurofibromatosis. Community Support Don’t fight alone! Meet others in the NF community to learn and share experiences. Stay Informed with NF Midwest See All NF Posts Fore! Make a Birdie for Charity at the 2024 John Deere Classic! Golf fans and philanthropists, rejoice! The John Deere Classic’s Birdies for Charity program is back, offering you a fantastic way… Great News! $25 Million Secured for Neurofibromatosis Research in FY 2024 There’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically… February 29th is Rare Disease Day February 29th is Rare Disease Day. In the United States alone, according to the National Organization for Rare Diseases (NORD),… Get the Latest NF News & Updates Sign up for our blog and always be up-to-date with Neurofibromatosis About NF Midwest Mission/History Leadership/Staff Financials Privacy Policy Get Involved Join the Community Participate in Research Raise Awareness Volunteer Learn About NF What is Neurofibromatosis? NF Type 1 NF Type 2 Schwannomatosis Be iNFormed Database Research Trials and Studies Resources Resource Submission Ways to Help Give Fundraise NF Midwest Walks4NF Ways to Give Shop News/Blog Past Newsletters Contact Us Email for SupportDonate © 2024 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional. 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